An online diary hiding in plain sight

Category MS

Thoughts on living with MS and reports on what I’m reading

The privilege of being open

As many of the people who’ll be reading this know, I’ve been writing recently about my cancer diagnosis and treatment. I’ve also been writing about my less recent diagnosis of multiple sclerosis. From time to time I’ve found it hard to write… Continue Reading →

What’s the mechanism behind EBV and MS – the journal club’s reaction

A few weeks ago, our MS journal club looked at a couple of papers exploring how EBV relapses in MS. This question interested me, and the rest of the group I think, for two reasons: First, scientific curiosity, if there’s… Continue Reading →

What’s the mechanism behind EBV and MS?

One of the really big news stories in the MS world this year has been the confirmation that the disease is triggered by epstein barr virus (EBV). A couple of reading group sessions ago we explored a number of the… Continue Reading →

Meditation, anxiety, fatigue and MS

This post aims to explore how mediation helps me when I’m anxious about MS symptoms or fatigue has taken hold. But the intro has grown a bit long. If you want to skip straight to the stuff about meditation, it’s… Continue Reading →

How heritable is MS?

This time our reading group explored the really very tricky topic of heritability. We looked at the following paper: Cotsapas, C (2018) Low-Frequency and Rare-Coding Variation Contributes to Multiple Sclerosis Risk, Cell 175, 1679–1687 One of our number (who would… Continue Reading →

Genetics, the microbiome and MS

In my last post I noted that our reading group was going to explore the role that gut health might play in MS. We read two papers and two of us agreed to do a short presentation as a stimulus… Continue Reading →

The gut biome and MS

The next session of our reading group is going to explore the role that gut health might play in MS. The role that the microbiome in both triggering and causing progression in a number of diseases is an exciting new… Continue Reading →

More on EBV and MS

Two weeks ago our MS Reading group looked at the recent papers confirming the link between Epstein Barr Virus and MS. Next month we’re going to be exploring this link in more detail, focusing in on how COVID affects MS,… Continue Reading →

MS reading Group: EBV and MS

Next month our MS reading group is going to be looking at the latest papers on the causes of MS. This is exciting research from a scientific perspective, and potentially offering up hope of a cure (but it’ll be a… Continue Reading →

Reading the MS research

Last year I suggested the idea of a reading group for people with MS to get their heads round the scientific literature. The aim being to try to understand what is happening to us and to help us ask more… Continue Reading →

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