Ever Ephemeral

An online diary hiding in plain sight

But what’s the writing between the lines?

This is a very short update. In my last blog post, There’s writing on the wall, I explored the uncertainty of my current situation. There was clarity, the tumour has grown back. The team were very clear with us and… Continue Reading →

There’s writing on the wall…

…but what does it say, and why are there so many walls with different words, down so many different dark and light pathways? At least that’s the situation I feel like I’m in as I write this, which is Christmas… Continue Reading →

Medical smells linger and have ‘evocative’ effects

Smell is one of the most evocative senses given its ability to take you viscerally to a time and place. This was unfortunate for me a couple of nights ago given how challenging the day before had been; a day… Continue Reading →

Wordle Spotify Radio

🟨⬛🟨⬛⬛⬛🟩⬛🟨⬛⬛🟩⬛🟩🟩⬛🟩🟩🟩🟩⬛🟩🟩🟩🟩🟩🟩🟩🟩🟩 Wordle 905 6/6 (11 December 2023) Warning post contains Wordle spoilers. I love discovering new music, but with the whole of the streaming world out there it’s hard to know where to start. Then along came Wordle which generates,… Continue Reading →

Swings and roundabouts

Over the past month or so things had started to look more positive. I’d started to have more energy. So, I started back to work, making my way up from an hour or so a day to four to five… Continue Reading →

Taking the fight to the cancer

Readers of this blog will know that I’m undergoing treatment for brain cancer. I’m fortunate enough to be able to access both radiotherapy and chemotherapy, as well as travel to Cologne for some personalised immunotherapy. This latter is interesting enough… Continue Reading →

Schrödinger’s Tumour

My chemotherapy is now over. Since my last post, it’s been decided that I won’t take the pills for the final three days as these are probably the cause of my allergic reaction. On Monday I went in for an… Continue Reading →

It ain’t over till it’s over?

This week is (or was) my last week of chemo. I’d been expecting, and looking forward to writing a short post here to update all the lovely people who’ve sent me such supportive messages. It was going to be a… Continue Reading →

The privilege of being open

As many of the people who’ll be reading this know, I’ve been writing recently about my cancer diagnosis and treatment. I’ve also been writing about my less recent diagnosis of multiple sclerosis. From time to time I’ve found it hard to write… Continue Reading →

I’m not fighting cancer, it’s harder than that

I’m now two thirds of the way through my chemotherapy treatment. I’m ready to reflect and right now my fatigue levels are lower, so I’m able to. I’m eight months after my diagnosis. I can’t remember now what I thought… Continue Reading →

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