Ever Ephemeral

An online diary hiding in plain sight

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What are the right questions?

In my last post I reflected on the psychological impact of my radiotherapy after my brain tumour diagnosis. I hope what came through this was a reflection on how much of this impact could have been avoided by me asking… Continue Reading →

Reflections from the halfway point of radiotherapy

Friday last week saw me get the 15th day of radiotherapy under my belt (or, more accurately, into my head). As of Friday, only 15 days to go; I’m halfway! I’ve been mulling this post for a while and reaching… Continue Reading →

A bit of a blow

I’ve been putting off writing this post for lots of reasons. However, I now want to start writing about the impact of the news I lay out below. I can’t do this until I say the dreaded words, “I have… Continue Reading →

What’s the mechanism behind EBV and MS – the journal club’s reaction

A few weeks ago, our MS journal club looked at a couple of papers exploring how EBV relapses in MS. This question interested me, and the rest of the group I think, for two reasons: First, scientific curiosity, if there’s… Continue Reading →

What’s the mechanism behind EBV and MS?

One of the really big news stories in the MS world this year has been the confirmation that the disease is triggered by epstein barr virus (EBV). A couple of reading group sessions ago we explored a number of the… Continue Reading →

Meditation, anxiety, fatigue and MS

This post aims to explore how mediation helps me when I’m anxious about MS symptoms or fatigue has taken hold. But the intro has grown a bit long. If you want to skip straight to the stuff about meditation, it’s… Continue Reading →

How heritable is MS?

This time our reading group explored the really very tricky topic of heritability. We looked at the following paper: Cotsapas, C (2018) Low-Frequency and Rare-Coding Variation Contributes to Multiple Sclerosis Risk, Cell 175, 1679–1687 One of our number (who would… Continue Reading →

Genetics, the microbiome and MS

In my last post I noted that our reading group was going to explore the role that gut health might play in MS. We read two papers and two of us agreed to do a short presentation as a stimulus… Continue Reading →

The gut biome and MS

The next session of our reading group is going to explore the role that gut health might play in MS. The role that the microbiome in both triggering and causing progression in a number of diseases is an exciting new… Continue Reading →

More on EBV and MS

Two weeks ago our MS Reading group looked at the recent papers confirming the link between Epstein Barr Virus and MS. Next month we’re going to be exploring this link in more detail, focusing in on how COVID affects MS,… Continue Reading →

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