I’ve been putting off writing this post for lots of reasons. However, I now want to start writing about the impact of the news I lay out below. I can’t do this until I say the dreaded words, “I have cancer”, because otherwise the posts I want to write either become too convoluted or don’t make sense.
Back in mid-November, I started getting brutal headaches and visual disturbances. At the time I thought it was a progression of the MS. I managed to get an MRI scan relatively quickly.
I didn’t want to hear the news that I was having a relapse, but I certainly wasn’t expecting to hear that it wasn’t a relapse, but a tumour pressing on my brain and optic nerve.
I was booked into surgery and went under the knife within a week. For emergencies like this the NHS is brilliant. I really want to recognise all the staff who treated me. They’ve only just come out from the pressures of Covid and are currently in dispute with a government that won’t recognise how low their pay is. Despite all this, my treatment was exemplary.
I’m currently undergoing radiotherapy for 6 weeks (the subject of the blog post that has been brewing and prompted this one), and then a bit of a break before I start 6 months of chemotherapy.
I don’t want to sound panglossian, but things aren’t as bad as they sound. Or at least there are some positive things we’re holding on to. They found the tumour early. There were two benefits from having MS. First I was in the system and could get a scan relatively quickly. Second, there is a historical set of scans. A bit like Brexit, the bonuses of having MS are somewhat bitter.
As a result of the previous scans. we know the tumour wasn’t there 6 months before it was found. So I’m being treated early which makes a huge difference. Secondly, the type of tumour I’ve got rarely grows more than 2cm away from where it was found, so it’s unlikely to spread.
I don’t promise to blog regularly – there are enough cancer blogs out there already; this is one of the things that has stopped me blogging until now. However, if I’ve got something I want to get off my chest, or think I’ve something interesting to say, I will come back here.
17 February 2023
01/03/2023 at 20:08
Hello Simon. I had my cancer in 2013. All I can say is hope they got it early and that you see your treatment as an inconvenience. My very best wishes for a full recovery.
If ever you want a chat please reach out.
02/03/2023 at 09:03
Thanks Shai, so good to hear from you. At the moment I’m in a pretty good place all things considered, but it would be good to catch-up when energy levels rise.
02/03/2023 at 20:47
Dear Simon
Very sorry to hear about both the MS and now cancer. My wife Susan found she had quite advanced breast cancer – but that was mid 90’s, nearly 30 years ago. So whilst it will have been a real shock, they know so much more about cancer these days and so there is everything to aim for. It would be good to touch bae when you are in a position to discuss things global and democratic. All the best. Robert
03/03/2023 at 09:22
It’s very good to hear you Robert and I’m sorry to hear about your wife. Cancer treatment is better now and there are lots more second line options if it does go pear shaped. It would also be good to catch-up. Right now that’s not possible, the treatment is taking it out of me, but perhaps when the radio is finished – but then I do have 6 months of chemo after that so it might be a bit longer…! All the very best, Simon
05/03/2023 at 06:50
I am very sorry about your predicament Simon. Let’s hold on the positives that the devil was diagnosed early and the fact that they say it rarely spreads far from its origin position.
I hope all the treatment will go well. Yes, I would love to hat to you whenever it is the right time for you. My brother who used to work with Sue at Chapwanya is currently being treated for borne marrow cancer. He is a stable condition at the moment.
05/03/2023 at 09:09
Willard
Good to hear from and thanks for your kind message. I’m sorry to hear about your brother, but glad that he’s in a stable condition. I hope he comes through quickly and well. All the very best, Simon
06/03/2023 at 20:44
Hello, Simon. I have long appreciated you and your work, and now I also appreciate your open honesty. Thank you for being such an inspiration. I join all your friends in sending you support.
07/03/2023 at 09:11
Thank you Anne, likewise, I really think the work you are doing is critical. Your words mean a lot. Stay well